16 Mar #WhyNotDevin Fundraiser 4/15/17 – Sign Up Here
Bubble Soccer Fundraiser for Devin Suau
New England Bubble Soccer teams up with Seacoast United Kings and Suburban Athletic to organize fundraiser for 6-year-old, Devin Suau, diagnosed with DIPG.
Devin Suau is six-years-old, and after falling off his snowboard in January and seeing a doctor about a possible concussion, he was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a very rare type of pediatric cancer that is aggressive and unforgiving. The tumor is located in Devin’s brain stem. Tragically, because of its location, the tumor is inoperable and has no known cure. Devin’s family was told he likely has somewhere between 8 months to 2 years to live.
Devin’s family was completely blindsided and devastated by this news and shattered that there is no cure. Devin is the youngest of 4 boys, he loves to play soccer, lacrosse and snowboard and looks up to his brothers a great deal. He may be the youngest in his family but he has the biggest personality, making anyone who knows him laugh and fall in love. His parents, James and Christine, chose to believe that Devin will beat the odds and be a miracle that the DIPG community needs. Someone has to be first.
With this fundraiser we hope to add another resource to raise funds for the cause. That said, it is also very important to Devin’s family to raise awareness about DIPG. This disease, because of its rarity, gets very little to zero funding, research, or backing from the medical community. That has to change!
Join the Suau’s fight. Join Devin’s fight. And be part of the greatest comeback story ever told!
**Please follow Devin’s story on twitter @WhyNotDevinDIPG
Also, the below PO Box has been set up for your love and support.
PO Box 755
Framingham, MA 01701
Please click on image below title to register yourself or your team.
Any business or anyone interested in donating, volunteering, or helping at this event please leave a comment below or email Ronaldo@NewEnglandBubbleSoccer.com